We are blessed to have such a wonderful pediatrician! He called me today before he left for Boston. He was able to speak with the specialist and get Alexander's chart straightened out. He went over with me what changes were made and verified that everything he had said was accurate. Everyone is in agreement that we will not do anything for the time being. It seems like Alex's lower GI tract may be settling down, and everyone wants to see how long this lasts before any more testing is done. The specialist also agreed to the Celiac blood work when he flares again. A simple blood test seems like a more logical step than more scoping right away. If they can keep Alex's file straightened out, we have slightly more faith in another visit to Albany Med.
We are blessed to have so many caring friends and family. Many people have reached out to us. In just the short time that this blog has been up, we've heard about specialists throughout the country that may be able to offer us assistance. We have had prayers given on our behalf and received words of encouragement. We have been offered sympathetic ears and warm embraces.
We are blessed that Alex's condition is not more serious and has not affected his development. Many children with Alex's conditions (particularly this lower GI issue) have developmental delays from the malnurishment. His pediatrician always remarks on how impressed he is with Alex's development and how lucky we are that he isn't having developmental issues. For some kids, that's what it takes for more intervention to happen.
We continue to teeter with the reflux issue, but are grateful that things are a little quieter for the moment. We are trying to enjoy this lull, but it's very hard to not be anxious about when "the other shoe will drop." Thank you all for your support.
I'm so glad you're happy with your pediatrician. We loves ours, but I have to ask, who are you seeing?
ReplyDeleteWe see Dr. Larsen. I had such a hard time finding a pediatrician in Latham. We wanted a practice where we could see the same doctor and not get lost in a big practice. We thought the consistency would be so important if Alex had any kind of a chronic issue - glad we stuck with that feeling! We were disappointed that we couldn't meet with him ahead of time, but he had come so highly recommended from many people and there was a kindness and warmth from the receptionist that we hadn't found elsewhere. We didn't meet him until the hospital and we knew instantly we'd made the right choice for us. If you ever have to switch, I'd certainly recommend him!
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ReplyDeleteWe see Dr. Abbott and love him! He is in the same practice as your doctor. My sister's children had Dr. Larsen and loved him. You are in good hands. It's a great practice!
ReplyDeleteI think we have seen Dr. Abbott on a weekend visit. We have seen two of the other doctors for urgent, weekend appointments and have been very comfortable and happy! It IS a great place! :-D
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