The screw-ups in Alexander's pediatric GI office continue. I had a nice argument with the nurse there this morning. Last week we were planning to schedule Alex for another endoscopy and a colonoscopy to screen for Celiac Disease, and to see if anything else was going on. This morning she calls and says that Celiac has been "ruled out" because he already had an endoscopy in July. "But he wasn't on wheat then," I said. "Yes he was," says the nurse. "No he wasn't," I say. "Yes he was. The doctor said he was," says the nurse.
So they referred him for an abdominal X-ray to look for a blockage. I called his pediatrician in my frustration about not being listened to and my confusion about why they are SO screwed up over there. We're seeing the pediatrician in the morning. He had his abdominal X-ray this afternoon, but no results yet.
He has been having trouble with his reflux over the past week. His pediatrician is looking to put him back on a med tomorrow when we meet. We hate the thought of him on meds again, but it seems to be necessary for atleast the time being. I am glad that we had the time "off meds," though, so we could see how he would do.
Wow, Sarah, this sounds so difficult, which I'm sure it is. With so much going on, I'm hoping you're keeping a log of everything they have you doing and that you try, just so you can keep it all straight if you need to answer things like this about what has already been tried, etc. Doctors are certainly not infallible, and it unfortunately falls on you to make sure they do things correctly.
ReplyDeleteI have always compared medicine to looking at the moon. Half of the moon is visible and brightly lit - landmarks are easy to see and identify. But equally as much remains in the dark - you known something is there - but it can't be seen - yet. However, the moon does rotate - slowly - and the darkened terrain is brought into new light.
ReplyDeletePlease know that Alex, Bert, and you have many companions on this exploration.
You are an amazing Mom.