2 and a half weeks ago we had our trip to Boston. It is truly an amazing hospital. During the day, it is a bright, bustling, fun atmosphere. Alex attended storytime, music therapy, craft time, played in the playroom, went up and down musical stairs, and got to meet a player from the Red Sox! At night, however, you're reminded of where you are - hospital monitors, exhuasted parents, tight security, and children who just want to go home.
We were very pleased with the doctor - his approach, his thinking, his skills. We wish our insurance would let Alex be seen there regularly. While admitted, Alex had bloodwork done, a rectal manometry, an esophageal manometry, and an impedance study. I was able to get the blood results last week, and everything was fine. His doctor is currently on vacation, but we expect to get the diagnostic results soon. He wasn't particularly symptomatic during the testing, so we aren't sure how much information they were really able to get. I'm sure whatever we learn, however, will be helpful in figuring out what our next steps will be, if any.
So many places claim to offer a great facility, medical and volunteer staff, and services, but CHB really delivers. We are so incredibly grateful to have had this opportunity. And we are so thankful for the extraordinary family and friends that have surrounded us with support.
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