Prior to today, I had been asked what I hoped to get out of this appointment. "I just want it to go well." I didn't really know what that meant...I had no decision that I wanted the doctor to reach. I just wanted it to go well. And it did.
Alexander has been referred for the swallow study, but it is one that can be done locally. I was thrilled to hear that. Our GI wanted it scheduled as soon as possible, so I should be getting a call sometime this week with the appointment.
Addressing his lower GI concerns, he felt that Alex has a general motility disorder. That is what I had suspected all along, but it is nice to have everyone on the same page. It will just involve indefinitely monitoring his diet closely and striving to maintain a comfort level for him. Alex has already been scoped twice and it doesn't seem that there is much more information to obtain.
Regarding his reflux, the doctor was supportive of Alex having the fundoplication surgery. Nothing will be decided on that at this time. We and his pediatrician are undecided and everyone needs to be on board before we move forward.
So I left feeling listened to and that his needs were being appropriately addressed. The ultimate outcome could be that this is Alex's "normal" and we'll just do our best to keep him comfortable. Maybe things will just improve for him over time. Who knows? We'll just keep plugging along and addressing issues as they arise.
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