It's been a week since we doubled the meds. Things definitely got worse before they got better, but we're all still standing! The Prevacid is doing what it's supposed to be doing - but nothing more. It has relieved the pain of the reflux, but Alexander is still refluxing a great deal, particularly at night. It has also reduced the inflammation in his esophagus, and he's transitioning to more normal eating habits. We're very glad he is willing to eat again.
I spoke with his pediatrician today, and the conversation went as expected. He is recommending we reconsider putting him on Reglan. Reglan is the only medication on the market that treats the actual reflux. It's also a highly risky medication and one with very dangerous side effects. We were asked to consider it a year ago. We decided against it at the time, and, thankfully, things calmed a bit for Xan.
We also discussed where to take him for treatment. A new doctor has joined the Pediatric Gastroenterology practice at Albany Med. Though the office leaves a great deal to be desired, everyone agreed that we should give a local doctor one more shot before going out to Boston Children's Hospital. His appointment is for March 22nd. Hopefully things will calm down a bit between now and then.
After the last post, we received a large outpouring of support - cards, emails, phone calls, and many offers for assistance. I can't tell you how moved and appreciative we are. We are incredibly blessed to be surrounded by so many caring and generous individuals. Thank you all so much!!
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