Well the call came! We got our appointment out in Boston! I could barely breathe when she called I was so excited. I'm not going to post specifics about our trip here, but you can email me if you want to know. Alexander will be seen this summer and (for good and bad) he'll spend 3 days at the hospital (2 days admitted). They didn't give me a lot of information yet about how he will be scheduled, but she said there will be a lot of testing. Clinic should be calling before we go out to give me more information about what tests will be done. We plan to do some fun things while we are out there, too, and I'll post the details of our trip when we get back.
We are, naturally, very anxious about the trip, and pray that we will leave with new information that will help us move forward.
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