Pathology Report

Alex's doctor called this morning with the pathology report.  The biopsy from his esophagus (which was the one that looked like it might be questionable) showed changes to the esophagus as a result of the reflux.  Thankfully, it didn't show some of the other conditions that she was concerned about. 

The plan for right now is to keep him on his meds, and switch to rice milk for two weeks.  If there isn't a change with the rice milk, then he can go back to soy milk.  The doctor is contacting a nutritionist, because we need to add some supplements to the rice milk.  He also needs to be on a high (healthy) fat diet and take a multi-vitamin while on the rice milk. 

As far as the hiatal hernia surgery, it does look like he'll be having it at some point.  The conditions that will implement it are vomitting, pain, and poor weight gain.  Since he meets two out of those three conditions at this time, we are going to work with his diet and reassess in September when he goes back.  If he gets really sick between now and then, of course that appointment will be moved up.  It's a 2-3 hour surgery with a very long recovery for a 2 year old, so everyone would like to put it off as long as possible.  It's also not a "cure all."  There's no telling how much it will benefit him, and doesn't mean he won't need additional surgery in the future. At this point, it's his next step, though.

This week he's been getting progressively worse - sleep is becoming a nightmare for both of us.  We're hoping this weekend brings some improvement.